Monday, April 25, 2011

Sight for the Sightless

I just got back from an intense week serving on a medical mission through the Sight for the Sightless Initiatve based at KK Eye Institute in Pune, India. This was a very different experience from any of my ORBIS missions or my Zambia mission in many respects. India is fascinating from a medical perspective in that it has first-rate physicians with some centers comparable to those of America but the population has masses of patients who have the health status of Africans. The country is in transition, with medical personnel & infrastructure highly capable yet simply overwhelmed by the sheer number of those in need, as well as hobbled by a lack of top notch equipment, instruments, and supplies.

For background, there are likely 20 million patients with at least one blind eye from cataract in India and about 8 million with corneal blindness. There are only 13,000 ophthalmologists in India, as opposed to 18,000 ophthalmologists in the US (which has only a quarter of the population). From a corneal perspective, donor tissue is much less available in India (unfortunately there is not as yet a well-developed culture of donation on passing away). So my objectives for the week were to do both service in terms of medical and surgical treatment of cornea and complex cataract conditions and skills transfer in advanced techniques and technology.

It was a physically grueling and emotionally exhausting week. With lectures, clinic, and surgery, we got done pretty much at 8 or 9pm each day (starting each day at 8am). Business dinners on future planning and needs followed, so I pretty much was going on 5 hrs of sleep each day. The most poignant moment was clinic on the first day during which we saw about 20 kids from the local blind school. For most of these children, I was a decade late and a dollar short. While I am a bit of a dinosaur in medicine (having finished medical school before the Internet and residency before cell phone), I was confronted by even more ancient demons this past week: children who had scarred corneas following measles infection when they were infants, children with wrecked eyes from Vitamin A deficiency. There are few things more heart-wrenching than telling child after child there is nothing we can do. There were 3 children who we thought we could help so we proceeded with transplantation later in the week.

Over the next several days, we performed (3 of these were children, the rest adults):
• An artificial cornea on a child who had lost one eye, and had a badly scarred cornea (barely able to see motion) in the remaining eye that was not a candidate for a standard transplant
• A combined cornea transplant with cataract extraction
• A partial thickness cornea transplant of the front of the cornea
• Two partial thickness transplants of the back of the cornea (one combined with cataract removal)
• A full thickness cornea transplant
• Several hard cataract cases and some amniotic membrane procedures

By comparison, I usually do 1-2 transplants a month in the US. These were all challenging cases given the complexity of the tissue damage on the eyes and the circumstances of available and (unavailable) equipment. But the best part (in addition to fixing the conditions and hopefully helping the patients) was teaching. I spent a lot of one on one time at the Institute with a very talented surgeon, Dr. Kapoor, and it was very rewarding to see her rapid progress over the course of the week mastering the techniques of chopping cataracts and picking up key elements of cornea transplantation. We also did some live surgery teaching the surgical maneuvers of some complex cataracts and the artificial cornea to a group of local ophthalmologists, and there were several excellent interactive small group sessions, surgeon-to-surgeon.

There were some funny moments during the trip. The hospital had arranged a press conference noting the complex cases being done that week and highlighting the need for corneal donation. During this, one of the reporters, whose first name was Nozia, came up to me and introduced herself as “Hi, my name is nausea.” It was all I could do to not burst out laughing and think of where else that joke could go. Then there were the episodes in the OR with the cotton buds with extra lint (which are a pain during eye surgery) which I nicknamed after the host and MC for live surgery, Ashiyana Nariani, who in turn promised to send me Q-tips for Christmas. Later on, I was trying to tell the patient to look down in broken Hindi, "Kali Baga Baba"; I apparently was not understandable and told Ashiyana my Hindi was worse than hers, and she told me I was actually speaking in Marathi (which I don't know either :( ). And then there was the ophthalmologist attending the live surgery and lecture workshop who requested to share his experience and promptly proceeded to regaling the audience with his life story, including the name of his childhood neighborhood street.

All in all, it was a fantastic trip. It was enabled by several groups and people to whom I owe great thanks and appreciation. The leadership of KK Eye Institute (Renu Wadhwa – CEO, who helped make things possible) and the international NGO Sight for the Sightless (founded by Dr. Ashiyana Nariani), the clinic and operative staff of the local hospital (especially Dr. Kapoor, Mr. Rohit, Ms. Madhu, Sister Pradhan, and Mr. Sachin), my mentor Dr. Claes Dohlman (the inventor of the artificial cornea who donated one for this trip), Sameera Farazdaghi of Tissue Bank International and Kelby Koop of Utah Lions Eye Bank, and my home team from Utah who organized things on this end: Jackie Simonis, Chandler Crane, and Tina Szarek.

I hope my fellow ophthalmologists and those interested in vision care will join the fight against needless blindness by contributing their time to service and teaching and making a difference where both short and long-term impact can be made. I also hope that developing societies as they develop focus resources on preventing needless blindness through awareness, encouraging eye donation, fighting diseases like the measles and malnutrition. Saving and restoring vision is probably one of the most important and cost effective things we in health care and societies as a whole can do. Especially for children, who are all too often neglected in the developing world.


At 11:55 PM, Anonymous Anonymous said...

Well Done!
'Manava Sevaye Madhava Seva'
But Thalli, Thandri guru Deivam goes as well.
Remember it.
Also family is vital for excellent professional growth-family is the root, personal life is the tree and the professional life is the flowers and fruits.
So get back into the fold and have a Great Life!
Well wishers

At 11:35 PM, Anonymous Anonymous said...

Hi Bala,

I like all your writings so far. You are a good writer,you are a great achiever and more than that it would be nice for the world to see if you are a great human too.
I came to know about you quite recently, I have read about Orbis, your research and most of the information available online about you, which is really interesting.

Gandhiji is one of your ideals, I think to reach his levels, you are yet to reach a common man either in my native country India or in this country (USA). I made a huge statement here, think about it.
well wisher

At 5:19 PM, Anonymous Laks Pathgi said...

Many eye surgeons give sight to sightless. They do this as their vocation and to make a living. But some of them go a step higher and do it for for altruistic reason. Many of those noble souls still have their vision focused on their professional skills. Only a chosen few among them have interests outside their professional boundaries. And Bala is one of those rare breeds. He not only gives sight to the sightless,but also lets light into the dark recess in the hearts of minds of many. From whatever little I know of him, he stands tall(literally) in my view.


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